ArticleJournal of the American Medical Informatics Association : JAMIA
Giving patients access to their medical records via the internet: the PCASSO experience.
Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 43 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
43 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Real-Time Remote Health Monitoring Systems Using Body Sensor Information and Finger Vein Biometric Verification: A Multi-Layer Systematic Review.Journal of medical systems · 2018Pooled it
- Improving Electronic Health Record Note Comprehension With NoteAid: Randomized Trial of Electronic Health Record Note Comprehension Interventions With Crowdsourced Workers.Journal of medical Internet research · 2019Trial
- Trial
- Practice-linked online personal health records for type 2 diabetes mellitus: a randomized controlled trial.Archives of internal medicine · 2008Trial
- Providing a web-based online medical record with electronic communication capabilities to patients with congestive heart failure: randomized trial.Journal of medical Internet research · 2004Trial
- A randomized controlled trial of a patient-accessible electronic medical record.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2003Trial
- Usability testing finds problems for novice users of pediatric portals.Journal of the American Medical Informatics Association : JAMIATrial
- A randomized trial comparing telemedicine case management with usual care in older, ethnically diverse, medically underserved patients with diabetes mellitus.Journal of the American Medical Informatics Association : JAMIATrial
- Use of a patient-accessible electronic medical record in a practice for congestive heart failure: patient and physician experiences.Journal of the American Medical Informatics Association : JAMIATrial
- Ensuring Equitable Access to Patient Portals-Closing the "Techquity" Gap.JAMA health forum · 2023Article
- SEE-Diabetes, a patient-centered diabetes self-management education and support for older adults: Findings and information needs from patients' perspectives.Primary care diabetes · 2022Article
- Patient Use and Experience With Online Access to Electronic Health Records in Norway: Results From an Online Survey.Journal of medical Internet research · 2020Article
- Significant and DistinctiveJCO clinical cancer informatics · 2019Article
- Towards an Architecture to Guarantee Both Data Privacy and Utility in the First Phases of Digital Clinical Trials.Sensors (Basel, Switzerland) · 2018Article
- Article
- Communicating laboratory test results for rheumatoid factor: what do patients and physicians want?Patient preference and adherence · 2016Article
- Testing the Electronic Personal Health Record Acceptance Model by Nurses for Managing Their Own Health: A Cross-sectional Survey.Applied clinical informatics · 2015Article
- Health Literacy, Education Levels, and Patient Portal Usage During Hospitalizations.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2015Article
- Positive perception of pharmacogenetic testing for psychotropic medications.Human psychopharmacology · 2014Article
- Giving rheumatology patients online home access to their electronic medical record (EMR): advantages, drawbacks and preconditions according to care providers.Rheumatology international · 2013Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThe Patient-Centered Access to Secure Systems Online (PCASSO) project is designed to apply state-of-the-art-security to the communication of clinical information over the Internet.
designThe authors report the legal and regulatory issues associated with deploying the system, and results of its use by providers and patients. Human subject protection concerns raised by the Institutional Review Board focused on three areas-unauthorized access to information by persons other than the patient; the effect of startling or poorly understood information; and the effect of patient access to records on the record-keeping behavior of providers. MEASUREMENTS: Objective and subjective measures of security and usability were obtained.
resultsDuring its initial deployment phase, the project enrolled 216 physicians and 41 patients; of these, 68 physicians and 26 patients used the system one or more times. The system performed as designed, with no unauthorized information access or intrusions detected. Providers rated the usability of the system low because of the complexity of the secure login and other security features and restrictions limiting their access to those patients with whom they had a professional relationship. In contrast, patients rated the usability and functionality of the system favorably.
conclusionHigh-assurance systems that serve both patients and providers will need to address differing expectations regarding security and ease of use.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.