ArticleJournal of the American Medical Informatics Association : JAMIA
Personal health records: evaluation of functionality and utility.
Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 52 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
52 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- What are the functionalities and features of mobile health record apps supporting persons experiencing social exclusion? A systematic literature review.Frontiers in digital health · 2025Pooled it
- Conditions potentially sensitive to a personal health record (PHR) intervention, a systematic review.BMC medical informatics and decision making · 2015Pooled it
- In a maternity shared-care environment, what do we know about the paper hand-held and electronic health record: a systematic literature review.BMC pregnancy and childbirth · 2014Pooled it
- Are personal health records safe? A review of free web-accessible personal health record privacy policies.Journal of medical Internet research · 2012Pooled it
- Trial
- Health literacy and task environment influence parents' burden for data entry on child-specific health information: randomized controlled trial.Journal of medical Internet research · 2011Trial
- A randomized trial comparing telemedicine case management with usual care in older, ethnically diverse, medically underserved patients with diabetes mellitus.Journal of the American Medical Informatics Association : JAMIATrial
- The military health system's personal health record pilot with Microsoft HealthVault and Google Health.Journal of the American Medical Informatics Association : JAMIATrial
- A Novel Secure Authentication Protocol for e-Health Records in Cloud with a New Key Generation Method and Minimized Key Exchange.Journal of King Saud University. Computer and information sciences · 2023Article
- The Use of a Technology Acceptance Model (TAM) to Predict Patients' Usage of a Personal Health Record System: The Role of Security, Privacy, and Usability.International journal of environmental research and public health · 2023Article
- Utility, Value, and Benefits of Contemporary Personal Health Records: Integrative Review and Conceptual Synthesis.Journal of medical Internet research · 2021Review
- Energy efficiency in software: A case study on sustainability in personal health records.Journal of cleaner production · 2021Article
- Requirements of Health Data Management Systems for Biomedical Care and Research: Scoping Review.Journal of medical Internet research · 2020Article
- Review
- Communicating Bad News: Insights for the Design of Consumer Health Technologies.JMIR human factors · 2019Article
- A Novel Reference Security Model with the Situation Based Access Policy for Accessing EPHR Data.Journal of medical systems · 2016Article
- Evaluating the Effect of Web-Based Iranian Diabetic Personal Health Record App on Self-Care Status and Clinical Indicators: Randomized Controlled Trial.JMIR medical informatics · 2016Article
- Confidentiality Protection of Digital Health Records in Cloud Computing.Journal of medical systems · 2016Article
- Development of interactive empowerment services in support of personalised medicine.Ecancermedicalscience · 2014Review
- Free Web-based personal health records: an analysis of functionality.Journal of medical systems · 2013Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesWeb-based applications have been developed that allow patients to enter their own information into secure personal health records. These applications are being promoted as a means of providing patients and providers with universal access to updated medical information. The authors evaluated the functionality and utility of a selection of personal health records.
designA targeted search strategy was used to identify eleven Web sites promoting different personal health records. Specific criteria related to the entry and display of data elements were developed to evaluate the functionality of each PHR. Information abstracted from an actual case was used to create a series of representative PHRs. Output generated for review was evaluated to assess the accuracy and completeness of clinical information related to the diagnosis and treatment of specific disorders.
resultsThe PHRs selected for review employed data entry methods that limited the range and content of patient-entered information related to medical history, medications, laboratory tests, diagnostic studies, and immunizations. Representative PHRs created with information abstracted from an actual case displayed varying amounts of information at basic and comprehensive levels of representation.
conclusionsCurrently available PHRs demonstrate limited functionality. The data entry, validation, and information display methods they employ may limit their utility as representations of medical information.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.