ArticleJournal of medical ethics2002
It doesn't cost anything just to ask, does it? The ethics of questionnaire-based research.
Article in Journal of medical ethics, 2002. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed.
- Differential antibiotic dosing in critical care: survey on nurses' knowledge, perceptions and experience.JAC-antimicrobial resistance · 2020Article
- Development and Preliminary Validation of Refugee Trauma History Checklist (RTHC)-A Brief Checklist for Survey Studies.International journal of environmental research and public health · 2017Article
- Research participation experiences of parents of children with cancer who were asked about their child's prognosis.Journal of palliative medicine · 2012Article
- Identifying obstacles to participation in a questionnaire survey on widowers' grief.BMC palliative care · 2010Article
- Perceptions of audio computer-assisted self-interviewing (ACASI) among women in an HIV-positive prevention program.PloS one · 2010Article
- Perceptions of a Quality of Work-Life Survey from the Perspective of Employees in a Canadian Cancer Centre.Quality & quantity · 2007Article
- Confidentiality and the ethics of medical ethics.Journal of medical ethics · 2003Article
- The cost of questionnaire based research.Journal of epidemiology and community health · 2002Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Patient-based outcome measures are increasingly important in health care evaluations, often through the use of paper-based questionnaires. The likely impact of questionnaires upon patients is not often considered and therefore, the balance of benefit and harm not fully explored. Harms that might accrue for research staff are even less frequently considered. This paper describes the use of postal questionnaires within a study of breast disease management in primary care. Questionnaire responses are used to describe the nature of discomfort or harms that may occur in such studies. Ethical issues raised by the harms are discussed in relation to the benefits of the study. Practical suggestions for reducing harm to patients are proposed. A secondary consideration, discomfort to the researcher, is also identified and suggestions made to reduce its effect. Finally, the role of research questionnaires as a study intervention is discussed.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.