ArticleJournal of genetic counseling2001
Ethical and professional challenges posed by patients with genetic concerns: a report of focus group discussions with genetic counselors, physicians, and nurses.
Article in Journal of genetic counseling, 2001. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed.
- Genetic counselors' awareness and attitudes regarding gene therapies.Journal of genetic counseling · 2025Article
- Genetic feedback for psychiatric conditions: Where are we now and where are we going.American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics · 2020Review
- Managing Couple Conflict During Prenatal Counseling Sessions: An Investigation of Genetic Counselor Experiences and Perceptions.Journal of genetic counseling · 2018Article
- The Genetic Counselor's Role in Managing Ethical Dilemmas Arising in the Laboratory Setting.Journal of genetic counseling · 2016Review
- Genetic Test Results and Disclosure to Family Members: Qualitative Interviews of Healthcare Professionals' Perceptions of Ethical and Professional Issues in France.Journal of genetic counseling · 2016Article
- Ethical and Professional Challenges Encountered by Laboratory Genetic Counselors.Journal of genetic counseling · 2015Article
- Respecting autonomous decision making among Filipinos: a re-emphasis in genetic counseling.Journal of genetic counseling · 2015Article
- Ethical and professional challenges of genetic counseling - the case of Austria.Journal of genetic counseling · 2013Article
- A survey of ethical and professional challenges experienced by Spanish health-care professionals that provide genetic counseling services.Journal of genetic counseling · 2012Article
- "It's challenging on a personal level"--exploring the 'lived experience' of Australian and Canadian prenatal genetic counselors.Journal of genetic counseling · 2010Article
- Publishing a master's thesis: a guide for novice authors.Journal of genetic counseling · 2010Article
- Evolving perspectives on genetic discrimination in health insurance among health care providers.Familial cancer · 2010Article
- Genetic counselors' perceived responsibilities regarding reproductive issues for patients at risk for Huntington disease.Journal of genetic counseling · 2010Article
- Genetic counselors' religiosity & spirituality: are genetic counselors different from the general population?Journal of genetic counseling · 2009Article
- A comparative analysis of ethical and professional challenges experienced by Australian and U.S. genetic counselors.Journal of genetic counseling · 2009Article
- Distress and burnout among genetic service providers.Genetics in medicine : official journal of the American College of Medical Genetics · 2009Article
- Professional ambivalence: accounts of ethical practice in childhood genetic testing.Journal of genetic counseling · 2009Article
- Genomic medicine: considerations for health professionals and the public.Genome medicine · 2009Article
- Are patient rights to information and self-determination in diagnostic genetic testing upheld? A comparison of patients' and providers' perceptions.Journal of genetic counseling · 2009Article
- A national survey of genetic counselors' personal values.Journal of genetic counseling · 2007Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Ninety-seven physicians, nurses, and genetic counselors from four regions within the United States participated in focus groups to identify the types of ethical and professional challenges that arise when their patients have genetic concerns. Responses were taped and transcribed and then analyzed using the Hill et al. (1997, Counsel Psychol 25:517-522) Consensual Qualitative Research method of analysis. Sixteen major ethical and professional domains and 63 subcategories were identified. Major domains are informed consent; withholding information; facing uncertainty; resource allocation; value conflicts, directiveness/nondirectiveness; determining the primary patient; professional identity issues; emotional responses; diversity issues; confidentiality; attaining/maintaining proficiency; professional misconduct; discrimination; colleague error; and documentation. Implications for practitioners who deal with genetic issues and recommendations for additional research are given.
Indexed as
Identifiers
11767802What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.