Evidence map›Paper›PMID 11703498›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2001

Who wants to know if their care is rationed? Views of citizens and service informants.

J Coast

Registry-linked trialAbstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2001. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT01503853 (Discussing Costs in the Doctor-Patient Encounter), which is not on this map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT01503853 completednot on this mapstarted 2011, after this paper: background citation

Discussing Costs in the Doctor-Patient Encounter

TypeobservationalSponsorEunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)Ran2011 to 2016Enrolled211ConditionsChronic Illness, Financial Burden
3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
  2. Article
  3. To accept, or not to accept, that is the question: citizen reactions to rationing.Health expectations : an international journal of public participation in health care and health policy · 2014
    Article
  4. Article
  5. Article
  6. Review
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

1 author.

J CoastDepartment of Social Medicine, University of Bristol, Bristol, UK. jo.coast@bristol.ac.uk

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo explore the views of citizens and service informants about whether they would want to know about any rationing of their own health care.

designIn-depth interviews using a semistructured schedule. Data were analysed using the methods of constant comparison. SETTING AND

participantsCitizens and service informants. MAIN VARIABLES STUDIED: Issues around health care rationing were explored within the context of the United Kingdom health care system.

resultsThe views of citizens and service informants were very similar in terms of whether they, personally, wanted to know about any rationing of their own care, with the vast majority wanting to be given this information. Informants were also similar in terms of their reasons for wanting to know about rationing: to be given a 'good explanation' to enable them to judge whether the decision made had been correct; and to enable them to change the decision if necessary, either through protest or payment. Many informants suggested that they would indeed be likely to react either by challenging the decision or by paying for care.

conclusionsThe findings suggest that policies to be open with people about the rationing of care would be welcomed, but also indicate that if protest follows such openness, it may be difficult for the health service to cope with greater explicitness. Further research is needed among patient groups actually facing this situation.

Indexed as

Attitude to HealthConsumer BehaviorDecision MakingHealth Care RationingAdultAgedAnecdotes as TopicAwarenessDisclosureFemaleHealth Care CostsHumansMaleMiddle AgedSampling StudiesState Medicine

Identifiers

PMID11703498
PMCPMC5060085

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.