ArticleHealth expectations : an international journal of public participation in health care and health policy2000
Reassurance through surveillance in the face of clinical uncertainty: the experience of women at risk of familial breast cancer.
Article in Health expectations : an international journal of public participation in health care and health policy, 2000. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it, 20 citations in OpenAlex.
- How risk is perceived, constructed and interpreted by clients in clinical genetics, and the effects on decision making: systematic review.Journal of genetic counseling · 2008Pooled it
- How do women experience a change in their clinically-derived breast cancer risk estimates: views from a UK family history risk and prevention clinic.BMC cancer · 2026Article
- French women's breast self-examination practices with time after undergoing BRCA1/2 genetic testing.Familial cancer · 2012Article
- Article
- Decision making with uncertain information: learning from women in a high risk breast cancer clinic.Journal of genetic counseling · 2004Article
- Editorial.Health expectations : an international journal of public participation in health care and health policy · 2000Article
- Living my family's story: identifying the lived experience in healthy women at risk for hereditary breast cancer.Cancer nursingArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo identify the main issues raised by clinicians when they are counselling women at risk of breast cancer and explore the response of a group of women 1 year after counselling.
designA qualitative study which involved the thematic analysis of a series of transcripts from clinical consultations, semi-structured interviews and focus groups.
participantsFirst, a series of clinical consultations (n=153), involving seven clinicians, were randomly selected during a Medical Research Council funded study of genetic assessment (TRACE). Second, a group of women (n=43), involved in the TRACE study, were interviewed, or joined a focus group, 1 year after their genetic assessment.
conclusionsThere was evidence that, although the clinical consultations were embedded with multiple messages of uncertainty, the women's accounts did not reflect this. The women talked about the reassurance they had found because they had met with an expert and become members of the surveillance society. The authors highlight the tension that exists because of the difference between lay expectations about on-going surveillance and the realities of collective service provision.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.