ArticleHealth expectations : an international journal of public participation in health care and health policy1998
Development of a patient decision aid for choice of surgical treatment for breast cancer.
Article in Health expectations : an international journal of public participation in health care and health policy, 1998. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Impact of Decision Aids for Shared Decision-Making for Patients with Early Stage Breast Cancer: A Systematic Review.Current oncology (Toronto, Ont.) · 2026Pooled it
- Preoperative patient education for breast reconstruction: a systematic review of the literature.Journal of cancer education : the official journal of the American Association for Cancer Education · 2011Pooled it
- A systematic review of information in decision aids.Health expectations : an international journal of public participation in health care and health policy · 2007Pooled it
- Contextual factors in shared decision making: a randomised controlled trial in women with a strong suspicion of breast cancer.British journal of cancer · 2009Trial
- Development and description of a decision analysis based decision support tool for stroke prevention in atrial fibrillation.Quality & safety in health care · 2002Trial
- Exploring Racial Differences in Treatment Decision-making in Chinese Immigrant and White American Breast Cancer Patients: the Role of Patient-Provider Communication.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023Article
- Elicitation of preferences in the second half of the shared decision making process needs attention; a qualitative study.BMC health services research · 2020Article
- Developing a patient decision aid for the treatment of women with early stage breast cancer: the struggle between simplicity and complexity.BMC medical informatics and decision making · 2017Article
- Wilfully out of sight? A literature review on the effectiveness of cancer-related decision aids and implementation strategies.BMC medical informatics and decision making · 2016Review
- Article
- A systematic development process for patient decision aids.BMC medical informatics and decision making · 2013Review
- Cognitive and psychological impact of BRCA genetic counseling in before and after definitive surgery breast cancer patients.Annals of surgical oncology · 2012Article
- Development and pilot-testing of a Decision Aid for use among Chinese women facing breast cancer surgery.Health expectations : an international journal of public participation in health care and health policy · 2011Article
- Patient factors in the implementation of decision aids in general practice: a qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2010Article
- The applications of PROs in clinical practice: what are they, do they work, and why?Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2009Article
- Toward a model for field-testing patient decision-support technologies: a qualitative field-testing study.Journal of medical Internet research · 2007Article
- Preliminary testing of a just-in-time, user-defined values clarification exercise to aid lower literate women in making informed breast cancer treatment decisions.Health expectations : an international journal of public participation in health care and health policy · 2006Article
- Decision aids in routine practice: lessons from the breast cancer initiative.Health expectations : an international journal of public participation in health care and health policy · 2006Article
- Patient education and decision making in breast reconstruction.Seminars in plastic surgery · 2004Article
- Educating women about breast cancer. An intervention for women with a family history of breast cancer.Canadian family physician Medecin de famille canadien · 2003Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeA patient decision aid for the surgical treatment of early stage breast cancer was developed and evaluated. The rationale for its development was the knowledge that breast conserving therapy (lumpectomy followed by breast radiation) and mastectomy produce equivalent outcomes, and the current general agreement that the decision for the type of surgery should rest with the patient.
methodsA decision aid was developed and evaluated in sequential pilot studies of 18 and 10 women with newly diagnosed breast cancer who were facing a decision for breast conserving therapy or mastectomy. Both qualitative (general reaction, self-reported anxiety, clarity, satisfaction) and quantitative (knowledge and decisional conflict) measures were assessed.
resultsThe decision aid consists of an audiotape and workbook and takes 36 min to complete. Based on qualitative comments and satisfaction ratings, 17 of 18 women reported a positive reaction to the decision aid, and all 18 reported that it helped clarify information given by the surgeon. Women did not report an increase in anxiety and 17 of 18 women were either satisfied or very satisfied with the decision aid.
conclusionThis pilot study supports the hypothesis that this decision aid may be a helpful adjunct in the decision for surgical management of early stage breast cancer. We are currently conducting a randomized trial of the decision aid versus a simple educational pamphlet to evaluate its efficacy as measured by knowledge, decisional conflict, anxiety and post-decisional regret.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.