ArticleBritish journal of cancer2001
Information needs of patients with cancer: results from a large study in UK cancer centres.
Article in British journal of cancer, 2001. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT00280722 (Does Increasing Research Awareness Impact on Accrual? A Feasibility Study. Protocol Version 3.4 Dated April 2005.), which is not on this map. Cited by 213 papers, 8 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Does Increasing Research Awareness Impact on Accrual? A Feasibility Study. Protocol Version 3.4 Dated April 2005.
Who cites it
213 citing papers in PubMed, 8 syntheses or guidelines pooled it.
- 5th ESO-ESMO international consensus guidelines for advanced breast cancer (ABC 5).Annals of oncology : official journal of the European Society for Medical Oncology · 2020Guideline
- Pooled it
- Fertility and parenthood issues in young female cancer patients--a systematic review.Journal of cancer survivorship : research and practice · 2014Pooled it
- Unmet psychosocial needs in haematological cancer: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2014Pooled it
- The validity of using analogue patients in practitioner-patient communication research: systematic review and meta-analysis.Journal of general internal medicine · 2012Pooled it
- The relation between information provision and health-related quality of life, anxiety and depression among cancer survivors: a systematic review.Annals of oncology : official journal of the European Society for Medical Oncology · 2011Pooled it
- Interventions before consultations to help patients address their information needs by encouraging question asking: systematic review.BMJ (Clinical research ed.) · 2008Pooled it
- Interventions before consultations for helping patients address their information needs.The Cochrane database of systematic reviews · 2007Pooled it
- To what extent should doctors communicate diagnostic uncertainty with their patients? An empirical ethics vignette study.Journal of medical ethics · 2025Trial
- Preconsultation Educational Group Intervention Can Address the Knowledge Gap in Postmastectomy Breast Reconstruction.Annals of plastic surgery · 2021Trial
- The impact of a physician's recommendation and gender on informed decision making: A randomized controlled study in a simulated decision situation.Health expectations : an international journal of public participation in health care and health policy · 2021Trial
- Tailored Web-Based Information for Younger and Older Patients with Cancer: Randomized Controlled Trial of a Preparatory Educational Intervention on Patient Outcomes.Journal of medical Internet research · 2019Trial
- Utility of a Referral Letter to Improve Comprehensibility of Cancer Patients in Palliative Care: a Single-Center Study.Journal of cancer education : the official journal of the American Association for Cancer Education · 2018Trial
- Patients want more information after surgery: a prospective audit of satisfaction with perioperative information in lung cancer surgery.Journal of cardiothoracic surgery · 2018Trial
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- Impact of non-welfare interests on willingness to donate to biobanks: an experimental survey.Journal of empirical research on human research ethics : JERHRE · 2014Trial
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- Testing messages to encourage discussion of clinical trials among cancer survivors and their physicians: examining monitoring style and message detail.Journal of cancer education : the official journal of the American Association for Cancer Education · 2013Trial
153 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
As part of a multi-centred study evaluating a communication skills training model for clinicians, we collected information preferences using an adaptation of Cassileth's Information Needs questionnaire from a heterogeneous sample of 2331 patients. Results showed that 87% (2027) wanted all possible information, both good and bad news and 98% (2203) preferred to know whether or not their illness was cancer. Cross tabulation of responses revealed no significant differences in information preferences for tumour site or treatment aims but did show an effect of age and sex. The few 58/440 (13.2%) patients who stated that in general they preferred to leave disclosure of details up to the doctor, tended to be older patients more than 70 years of age (chi square = 26.01, df = 2, P< 0.0001), although paradoxically they still wanted to know certain specific details. In comparison to men women preferred to know the specific name of the illness (chi square = 4.9, df = 1, P< 0.02) and what were all the possible treatments (chi square = 8.26, df = 1, P< 0.004). The results from this very large sample provide conclusive evidence that the vast majority of patients with cancer want a great deal of specific information concerning their illness and treatment. Failure to disclose such information on the grounds that significant numbers of patients prefer not to know is untenable.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.