Trial reportBMJ (Clinical research ed.)2000
Open access follow up for inflammatory bowel disease: pragmatic randomised trial and cost effectiveness study.
Trial report in BMJ (Clinical research ed.), 2000. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02985476 (Electronic Linkage for Inflammatory Bowel Disease to Deliver Joint Access to Health Reports), which is not on this map. Cited by 27 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Electronic Linkage for Inflammatory Bowel Disease to Deliver Joint Access to Health Reports
Who cites it
27 citing papers in PubMed, 5 syntheses or guidelines pooled it, 83 citations in OpenAlex.
- Psychological interventions for treatment of inflammatory bowel disease.The Cochrane database of systematic reviews · 2025Pooled it
- Patient-initiated appointment systems for adults with chronic conditions in secondary care.The Cochrane database of systematic reviews · 2020Pooled it
- Distance management of inflammatory bowel disease: systematic review and meta-analysis.World journal of gastroenterology · 2014Pooled it
- Patient initiated clinics for patients with chronic or recurrent conditions managed in secondary care: a systematic review of patient reported outcomes and patient and clinician satisfaction.BMC health services research · 2013Pooled it
- Pooled it
- Effect of patient-initiated versus fixed-interval telePRO-based outpatient follow-up: study protocol for a pragmatic randomised controlled study.BMC health services research · 2017Trial
- Patient initiated outpatient follow up in rheumatoid arthritis: six year randomised controlled trial.BMJ (Clinical research ed.) · 2005Trial
- Patients' experiences of an open access follow up arrangement in managing inflammatory bowel disease.Quality & safety in health care · 2004Trial
- Models of outpatient care delivery in inflammatory bowel disease: a scoping review.Journal of the Canadian Association of Gastroenterology · 2025Article
- Considerations on Multimorbidity and Frailty in Inflammatory Bowel Diseases.Journal of Crohn's & colitis · 2024Review
- An education-based telehealth group improves the management and clinical outcomes of patients with inflammatory bowel disease in China (THEIM study).United European gastroenterology journal · 2023Article
- Development and test-retest reliability of a new, self-report questionnaire assessing healthcare use and personal costs in people with inflammatory bowel disease: the Inflammatory Bowel Disease Resource Use Questionnaire (IBD-RUQ).Frontline gastroenterology · 2023Article
- Patient-initiated versus fixed-interval patient-reported outcome-based follow-up in outpatients with epilepsy: a pragmatic randomized controlled trial.Journal of patient-reported outcomes · 2019Article
- Article
- The impact of nurse-led annual telephone follow-up of patients with inflammatory bowel disease.BMJ quality improvement reports · 2014Article
- The role of primary care physicians in early diagnosis and treatment of chronic gastrointestinal diseases.International journal of general medicine · 2014Review
- Inflammatory bowel disease: an expanding global health problem.Clinical medicine insights. Gastroenterology · 2013Review
- Cost effectiveness of treatments for inflammatory bowel disease.PharmacoEconomics · 2011Review
- Inflammatory bowel diseases and the general practitioner's role in a region of Central Italy.Clinical and experimental gastroenterology · 2010Article
- Review
Corrections and comments
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Authors and funding
6 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo evaluate whether follow up of patients with inflammatory bowel disease is better through open access than by routine booked appointments.
designPragmatic randomised controlled trial.
settingTwo district general hospitals in Swansea and Neath, Wales.
participants180 adults (78 with Crohn's disease, 77 ulcerative or indeterminate colitis, 25 ulcerative or idiopathic proctitis) recruited from outpatient clinics during October 1995 to November 1996.
interventionOpen access follow up according to patient need.
main outcome measuresGeneric (SF-36) and disease specific (UK inflammatory bowel disease questionnaire UKIBDQ) quality of life, number of primary and secondary care contacts, total resource use, and views of patients and general practitioners.
resultsThere were no differences in generic or disease specific quality of life. Open access patients had fewer day visits (0.21 v 0. 42, P<0.05) and fewer outpatient visits ( 4.12 v 4.64, P<0.01), but some patients had difficulty obtaining an urgent appointment. There were no significant differences in specific investigations undertaken, inpatient days, general practitioner surgery or home visits, drugs prescribed, or total patient borne costs. Mean total cost in secondary care was lower for open access patients (P<0.05), but when primary care and patient borne costs were added there were no significant differences in total costs to the NHS or to society. General practitioners and patients preferred open access.
conclusionsOpen access follow up delivers the same quality of care as routine outpatient care and is preferred by patients and general practitioners. It uses fewer resources in secondary care but total resource use is similar. Better methods of ensuring urgent access to outpatient clinics are needed.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.